29 years old and in surgical menopause

At age 18 I started having abnormal Pap smears. My gynecologist had me come in every 6 months for a year to have another one which came back abnormal. We then moved on to having a colposcopy every 6 months which showed that I had high risk hpv. My doctor took 5 biopsies each time which was so painful. This continued for a couple years. I then had my daughter at 22 which I went into early labor multiple times. She finally came at 38 weeks pregnant. During my pregnancy it kicked in my hashimotos disease and I had to be put on hormones for my thyroid after I had her. After all of this craziness I went on to having my regular exams every 6 months. My gynecologist decided to watch it for another 2 years which during this time I started to have a lot of pain. I was having cysts on my ovaries rupture that put me in the hospital multiple times. The pain almost made me pass out. I spent many nights in the emergency room feeling like I was dying. Then I took a break from all of the biopsies and decided to have my second child which I had to be induced due to preeclampsia. After I had my son we went back to needing biopsies every six months. I then decided to ask my doctor to do a cone biopsy. She said that it wasn’t needed but that she trusted her patients intuition so we scheduled the cone biopsy. This changed everything. During my cone biopsy they found carcinoma in situ. I had a tumor on the inside of my cervix. They removed it with what they thought were clear margins. I did not have to go through chemo or radiation. After my cone biopsy my bleeding wouldn’t stop and they didn’t know why. I was in so much pain for a month with continuous bleeding. My doctor finally decided we should do a hysterectomy without removing my ovaries. That was a mistake but we will get to that later. So about two months after my cone biopsy I was going under the knife again but this time to completely remove my uterus. During my procedure they found a tumor in my uterus and diagnosed me with adenomyosis. They also found a tumor on my Fallopian tubes. So during my partial hysterectomy they removed my cervix, uterus and Fallopian tubes. When I woke up from surgery they told me that my ovaries looked great apart from a cyst and that they didn’t need to remove them but had to remove everything else. Almost a year later I was hospitalized again with excruciating pain. I was in the hospital for 3 days. The doctor there diagnosed me with endometriosis. At this point I was so tired of being in pain and wanted to be home. When I followed up with my doctor she said that they hadn’t seen any endometriosis during my previous hysterectomy but that she could perform a oopherectomy. So I went with my gut and decided to have my ovaries removed knowing that I would have to be on hormones until I was atleast 50 mind you I was only 27 now. At this point I was on 12 different prescriptions for pain management, anxiety/depression plus many other things. I was just so done with the pain. On the day of surgery I was scared because I had heard about all the horrors of waking up in menopause. I had read all these stories about women being depressed for months and I was already suffering from depression. I faced my fear and was under the knife again. During my surgery they found multiple benign growths on the wall by my ovaries which looked completely dead by the way. After my partial hysterectomy they had given me pictures of my ovaries which looked fluffy like clouds minus the bleeding cyst they looked perfect. The comparison of pictures they gave me from my oopherectomy made me sick. They looked completely rotten, one of the tumors had cut off blood supply to them. They saw zero evidence of endometriosis. This road has been so bumpy but I can say that I am pain free today. I am 29 and I have two beautiful children which I am so thankful for. I am on hormone therapy for my thyroid and surgical menopause but I am happy to say I only have to take three pills a day and a patch every three days. I still struggle from anxiety/depression but I manage to see the light with my kids being a constant reminder of how lucky I am, well that and medications. I wouldn’t have been able to do this without my husband by my side the entire time. He helped me make some of the hardest decisions in my life and was the best dad and husband through it all. I am in such a better place knowing that there is no more pain to come. Thank you for reading my story!

Story shared by...

Amber Rice

I am 29 years old and have two beautiful children, I was very fortunate to be able to have these two babies though the pregnancies came with struggle. I have had such a crazy medical experience and know that when I was going through it I couldn’t find any women my age that had gone through the same thing. I want my story to reach these ladies so that I can help them get through it.